THE
AIDS CULT and its seroconverts - Part 1
Ian Young
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VOL. 4 No. 5
"Purposely, the twenty-something boys, who have never known
a sex life without AIDS, fatalistically expose themselves to HIV as a test of ritual
manhood."
Jack Fritscher, Mapplethorpe:
Assault with a Deadly Camera, 1994.
"Deliver me from blood gatherers, O God, Thou art the
God of my health."
Book of Common Prayer
At the local gay bars and dance clubs, the raves and fetish nights and "AIDS
fundraising" events, a new style of body ornament is becoming fashionable. Young gay
men are beginning to sport tattoos, usually in block letters on the upper arm, that spell
out HIV, followed by a minus sign. The idea, of course, is that when (when!) you
seroconvert, you pay a follow-up visit to your tattooist, who changes your minus to a
plus. Simple.
The convertible (one way only!) tattoos signal an unsettling phenomenon that is
only now beginning to be acknowledged. An astonishing number of young gay men whose sexual
activity began only after the implementation of the "Safe Sex" and "AIDS
Education" programs of the 80s and 90s, are seroconverting testing positive
for antibodies, widely believed to indicate risk of AIDS. One estimate has it that one in
three twenty-year old gay men will be HIV-diagnosed or dead of AIDS by the age of thirty.
According to the psychologist Walt Odets, many of them accept AIDS not only as a
possibility for themselves, but "as a destiny about which they can do very
little."
A pair of recently published books, Odets own In the Shadow of the Epidemic:
Being HIV Negative in the Age of AIDS1 and William I.
Johnstons HIV Negative: How the Uninfected Are Affected by AIDS2 explore
this new insouciance about seroconversion and offer some disturbing insights into
contemporary attitudes. Odets is a clinical psychologist and psychotherapist; Johnston is
the facilitator of a discussion group for gay, antibody-negative men. Working
independently, they have amassed considerable evidence of what Odets describes as "a
psychological epidemic among uninfected gay men."
Now in its fifteenth year, the protracted AIDS crisis has had an impact on everyone in
the gay community, diagnosed and undiagnosed alike. Odets writes that he sees
"innumerable examples of psychological problems among gay men that seven years ago
would have been unusual and noteworthy, but are now so common that they pass almost
without comment." Many gay men are afraid to become close to anyone, as either lover
or friend, for fear any intimate involvement will be terminated by early death. As one man
put it, "Ive never thought about having a relationship for more than a couple
of years, because Ive never dated anyone who was going to live longer than
that."
Odets and Johnstons books are the latest additions to a growing body of
literature documenting the complex varieties of "survivor guilt" now experienced
by increasing numbers of gay men. Both authors discuss the finding that in todays
breezy, out-of-the-closet gay ghetto, antibody-negative men tend to be profoundly
clinically depressed, anxious, disoriented, hypochondriacal, uncertain about the future,
sexually dysfunctional, deeply demoralised and psychically numb. Many abuse alcohol or
drugs, and their physicians prescribe them millions of dollars worth of tranquillisers,
sleeping pills, anti-depressants and sedatives every year. More and more undiagnosed men,
Odets finds, now "live in nearly every detail like a dying man disoriented,
piecemeal, and with no assumption of a future."
From his years of intensive talks with friends, patients and clients, Odets concludes
that this widespread, endemic depression has its origins not only in the current health
crisis, but also in "a destructive mix of old developmental problems" that have
usually begun in childhood. Substance abuse is often chronic, reflecting mood disorders,
loneliness and stress; in this, antibody-negative gay men probably differ little from
their antibody-positive brothers. We may now be starting to recognize longstanding
patterns of psychoimmune disturbance in a second generation of gay men a generation
that has come to sexual awareness during the AIDS era.
A few years ago, when conservative commentator William F. Buckley, Jr. suggested that
PWAs should all be forcibly tattooed (on the arm and/or the buttocks) for instant
recognition, there was widespread disgust at the idea and embarrassment that the
apparently urbane Buckley would suggest it. Now, such tattooing is available on a
voluntary basis and there is no lack of takers. After a decade of propaganda about Safe
Sex, a sizeable cohort of young men, becomes eligible every year for HIV+ tattoos. Bill
Buckleys American Auschwitz Theme Park is almost here, and no boxcars will be
required.
One effect of the ubiquitous official warnings about "risk behavior" and
"vectors of (AIDS) transmission", is that more and more gay men now believe
their body fluids to be dangerous, and "define certain behaviors, such as anal sex or
oral sex, as unsafe in and of themselves, without regard to whether one of the people
involved had HIV...It is common," writes Odets, "for gay men now to say that
anal sex is unsafe even when practiced by two antibody-negative people."
William S. Burroughs is fond of quoting one survey that found most people believe you can
get AIDS from anal intercourse, whether or not HIV is present.
Anxieties about gayness, about sexuality, and about intimacy, now frequently express
themselves as fear of viral contamination, an ostensibly rational reason to avoid what has
always been problematic. When HIV is identified with feared (and unconsciously desired)
homosexual intimacy, the result is a powerful draw toward seroconversion. The undiagnosed
men interviewed in both these books repeatedly express the view that antibody-positives
live richer, more complex, more "authentic" lives, get more attention, are
better able to take risks including, significantly, the "risk of
intimacy" and that only with such risk-taking can life be meaningful and full.
This perceived link between antibody-positive status and emotional fulfillment is one
of many factors now propelling gay men toward seroconversion. These pressures emanate from
the AIDS Establishments group assumptions about gay men, assumptions which are more
and more clearly reflected in the ghettoized gay community itself. And it is the power and
diversity of the pressures to seroconvert that constitute the central, disturbing message
of both these books.
After the Reagan administration pronounced in 1984 that HIV was the sole cause of
AIDS, lucrative patents on HIV-antibody tests were granted to leading AIDS researchers and
an aggressive international promotion campaign for HIV-antibody testing began. At first,
most gay and AIDS advocacy groups considered testing to be dangerous and oppressive. In
the mid-80s, people entering the "Test Sites" (a term eerily reminiscent of
"nuclear test sites") often had to make their way through lines of vocal gay
demonstrators. Governments and pharmaceutical companies then directed a light dusting of
money to selected recipients and the protests died down. Soon a broad consensus developed
that testing was a virtue, a civic duty, and the smart thing to do.
Testing positive, in the current wisdom, leads to "early intervention," by
which is meant the prescription or administration of large quantities of pharmaceutical
products the so-called "antivirals" and so on principally
nucleoside analogues whose devastating "side-effects" often replicate AIDS
symptoms. Whether subsequent illnesses are caused by the inevitable "progress"
of the virus, or by a self-fulfilling prophecy is debatable.
The quotations and first-person accounts by antibody-negative men in these studies
suggest that while an antibody-positive test result was originally looked upon as a
calamity, this is no longer always the case. This is partly because some PWAs are learning
how to take care of themselves and are living longer, and partly because a growing number
of gay men see an HIV+ diagnosis and AIDS not as something that can or should be avoided,
but as, in Johnstons words, something "fundamentally linked to gay
identity". Certainly it has been represented to them that way. Heterosexuals and
lesbians are told, "AIDS doesnt discriminate!" But gay men have come to
perceive it as an inextricable part of their "community," their
"identity," and their future. One female-to-male transsexual told his therapist
that his transformation to a gay man would only be complete when he had contracted HIV! I
have heard gay men repeat the homophobic joke:
"GAY stands for Got AIDS Yet?".
In the 70s and early 80s a ghettoized consumerism (fast food, fast drugs, fast sex,
quick-fix medicine) was packaged and sold as "the Gay Lifestyle". Now AIDS is
increasingly presented as the new Gay Lifestyle. In the gay community of the 90s,
everything revolves around AIDS.
This AIDS-centred vision of community life has even made its encroachments on
lesbian society. In 1994, after the founder of the British organization for lesbians with
HIV, Positive Strength, revealed that her claim to seropositive status was false, AIDS
activist Simon Watney spoke of "an imaginary epidemic (of) fantasy AIDS" among
British lesbians. Lesbian writer Robin Gorna wrote that "although there are many gay
men who also lie about their HIV status, it seems that some lesbians feel unable to
articulate their own issues alongside the horror of AIDS. If you are a young dyke, your
identity is all tied up with AIDS, yet its not your stuff." She added that
there was no evidence to suggest lesbian sex poses any significant AIDS risk: lesbians
with AIDS, she said, tend to contract it from drug use and/or sex with men, which she
described as "still a taboo subject in the lesbian community."3
In all the fracas about how many lesbians get AIDS, Gornas remark that many gay men
lie about having HIV seems to have been overlooked.
Walt Odets draws our attention to the attitude, widespread in the gay community, that
only PWAs and antibody-positives have a right to express strong feelings. He recalls that
when he voiced his concerns about the emotional well-being of antibody-negative gay men,
he found it was considered inappropriate for antibody-negatives to "experience
feelings about their own lives worthy of discussion or worthy of the concern and attention
of others." The feelings of those regarded as "uninfected" are widely felt
to be "selfish, inappropriate, or simply ridiculous." Often, antibody-negatives
are even seen as The Enemy; one man, on the steering committee of a "mental
health" conference, when told of an antibody-negative discussion group, retorted,
"Thats like Germans getting together...to congratulate themselves on not being
Jewish!"
Society has never made the well-being of gay men a priority. On the other hand, if you
have AIDS or are antibody-diagnosed, a range of social services, support groups, medical
benefits and other perks becomes immediately available. Suddenly, attention is paid.
Variations of the same phrase crop up again and again in the sentimental AIDS literature:
"I never knew how much I was loved until I got AIDS." It makes a great ad
slogan, if AIDS is what youre selling.
In the urban gay ghettos of the 80s and 90s, a whole AIDS Culture has emerged an
"AIDS Community" based on an ever-shifting melange of medical and subcultural
assumptions. This new blood brotherhood is beginning to form a kind of Inner Order within
the exoteric conglomeration of the lesbian and gay scene, and a growing number of glossy
magazines now devote themselves to the perks and pleasures of the Positive Lifestyle. And
one "comes out" into this Lifestyle in one way only: by seroconverting.
Seroconversion is the ritual that all who would join the cult must endure. Those who have
lost friends, or, especially, one or more lovers, to AIDS may claim honorary membership.
The cults unofficial badge of honor is a looped red ribbon, usually pinned to the
chest, or rather to the coat. Originally a fund-raising favor, the "red ribbon"
is now commercially available in many stylish designer forms: one can choose from ceramic,
dyed leather, or 24-carat gold encrusted with red stones. Elizabeth Taylor is one of the
few who can afford a diamond and ruby "ribbon". Of course, fashion is fickle and
the red ribbon is already coming to be regarded as somewhat passé, not to say kitsch.
Under the pressure of protracted crisis, the transformation of signals, policies and
identities has been relentless. In the 80s and early 90s, the figure of the AIDS activist,
the seething ACT-UP clone, body pumped under the white political T-shirt, head shaved,
concentration- camp style, became, for a while, a symbol of erotic resonance, a sexual
icon. Having exhausted itself in unfocused anger, the fashion is less popular now than it
was.
The ongoing roster of AIDS dead (lots of blank space left on that memorial, how
thoughtful) constitutes the raison detre of this new, prototypically postmodern,
community. Obituaries and funerals are its social glue; its chief dramatic form is the
memorial service. Every two weeks, when the new issue of Xtra! comes out, everyone turns
to the obituaries first. The Toronto version of this Canadian gay newspaper combine (for
it has cloned itself) publishes an annual roster of AIDS dead, under the banner headline
"Proud Lives." Deaths from non-AIDS-related causes are relegated to a separate,
less prominent, section bearing the mundane and rather dismissive tag, "Other
Losses." antibody-positive decedents are sometimes placed in the "Proud
Lives" section, even if they committed suicide or fell off a mountain. If youre
positive, theres only one way to die, and were going to hold you to it.
The overshadowing of all other gay issues by the AIDS agenda (first pointed out by
Darrell Yates Rist) and the frequent dismissal of the concerns of the undiagnosed, have
understandably generated widespread feelings of "disenfranchisement" among
uninfected gay men. These feelings are reinforced when the undiagnosed are told to behave
as if they were infected: "Be good. Have Safe Sex" even if they are in a
monogamous relationship with an "uninfected" partner! Walt Odets suggests that
these injunctions have been ineffective in promoting safety and psychologically
disastrous.
Within the urban gay community, the undiagnosed now constitute what William Johnston
calls a "psychic minority" one that appears increasingly eager to Think
Positive and join the psychic majority, the AIDS/HIV Community. Though it would have been
inconceivable only a few years ago, a positive HIV-antibody test result, or even an AIDS
diagnosis, now frequently results in a decrease in anxiety! The acute stress of the
testing ritual is released by a positive result. Now, at least I know the worst and
Ill never have to be tested again! (Negatives are encouraged to come back.) The
director of one health service agency reports that individual "crisis responses
requiring urgent counseling" were generated by negative test results at a
three-to-one margin over positive ones!
Scattered through these two books are various responses to being told of a negative
test result: "All my friends are positive how can I relate to them?"
"Everyones going to be very angry at me." "I feel like Im being
left out of the great event of our time." "I hoped I would be positive so it
would give me an excuse to go back out and drink and drug." "I feel as if I
wont really have come out until Im HIV-positive." "Its a lot
simpler to think about AIDS than about being gay." "Guys who get AIDS get a lot
more attention." And, my own favorite: "Shit! Im going to have to go to
work tomorrow after all." Every two weeks, when the new issue of Xtra! comes out,
everyone turns to the obituaries first.
One gay man told me recently that when he revealed to an acquaintance that he was
antibody-negative, he received the sneering (presumably rhetorical) reply, "How come?
Didnt anyone want your tired old ass?" A gay student, who was relieved at his
negative test results, nevertheless made a wryly revealing comment about the whole process
and everyones attitudes to it: "For once," he said, "I was glad I
failed a test."
One contributor to William Johnstons book describes a gay man who eventually
seroconverted after many attempts: he "had a beatific glow on his face when he found
out he was positive. He had been expecting this for so long, and finally the desired
outcome was achieved." (His lover, he feared, was about to "dump" him if he
remained stubbornly negative.) This new attitude utterly unforeseen by either the
pundits of AIDS Education or its consumers leads Odets to ask whether counselors
"unconsciously suggest that a positive test result is more important than
a negative (one)?" The language used suggests they do; certainly they focus almost
exclusively on preparing their clients for "positive" results.
The man with the beatific glow is one of a growing group of gay men who see their
"progress" (this is the official term4) to
seroconversion and on to AIDS as somehow desirable or inevitable. For the burgeoning
cohort of seroconverts, the assumption of antibody-positive identity represents an
all-important rite of passage in their lives as gay men. A beatific glow is a
characteristic feature of religious conversion experiences, and in many ways, these men
resemble the freshly inducted members of a cult.
There is a growing perception that for a gay man today to be HIV-positive is, well,
positive. Connotations as fundamental as those suggested by the words "positive"
and "negative" are deeply imbedded in our interpretations of the terminology we
use. People do not easily transpose black and white, or accept a positive result as
negative. Nor can the frequent use of the word "status" be considered
inconsequential; we are lectured about our antibody "status", the subliminal
suggestion being that testing positive, becoming "Body Positive," and adopting a
"positive attitude" involves gaining a positive status, becoming worthy of
concern.5 The phenomena of the courageous, positive
seroconvert and his neurotic, negative twin have evolved out of the bizarre, dogmatic
logic of HIV fundamentalism what Walt Odets calls the contradictions,
inconsistencies and anomalies" of AIDS.
Odets writes that "a return to unprotected sex among gay men after about 1988
is now widely recognized." Why in 1988, four years after the announcement of HIV as
the cause of AIDS? My own experience from periodic visits to New York City, an AIDS
epicentre, is that the years 1987-88 constituted the height of what the novelist Andrew
Holleran has succinctly called "The Fear". Christopher Street was emptier than
it has ever been and many gay men were afraid even to kiss. Protracted, inhibited grief
and paralyzing terror seemed, even to a visitor, to be causing all sorts of neuroses and a
kind of mass mental breakdown. If the "return to unprotected sex" began in the
late 80s as Odets believes, it may well have begun as a reactive symptom of that breakdown
an heroic defiance of fear by stoically embracing what was believed to be
inevitable.
Just as the health crisis was about to be recognized, the poet and novelist George
Whitmore wrote that we engaged in so many of our "rebellious" acts (dangerous
sexual scenes, crawling around on all fours on the floor of the Mineshaft at four in the
morning) to show that we could do these things "without flinching" that
we were not, after all, sissies. John Rechy endowed sexually promiscuous gay men with
"heroic" qualities, calling them the shock troops of the sexual revolution. Is
the same defensive need to prove ones masculinity, ones courage, and
ones "in group" status now helping to create the phenomenon of the
seroconvert?
Survivor guilt often involves the feeling that one should not have survived and
even the hope that one will not survive. The urban gay lifestyle is designed for youth,
and for those committed to that lifestyle, the loss of youth may seem more terrible than a
fatal illness. Michelangelo Signorile wrote in a recent column that "far too many gay
men say they actually fear growing old in a gay world that puts the young and buffed on a
pedestal while treating the over-35 crowd like lepers." He tells of one young guy who
has unsafe sex because "he doesnt want to live to be 50. He doesnt want
to be another aging queen, being jeered at by people like himself." Another man said
he felt so "beneath" the men he was attracted to that hed "do
anything" for them, including have unsafe sex.6
Walt Odets concludes that "for some, the self-destructive aspects of unprotected
sex are important incentives to practice it. This," he emphasizes, "has nothing
to do with complacency, nor will traditional AIDS education address it."
The AIDS System now entrenched in the urban gay ghettos has aggressively promoted
HIV-antibody testing ("the AIDS test"), and most available AIDS Education has
been oriented toward encouraging people particularly gay men to "get
tested." Former presidential candidate Bruce Babbitt described the system as a
"voodoo health policy" animated by the idea that "if we keep sticking
needles into people and taking blood tests, the disease will go away." The apparent
non sequitur only begins to make sense if, unconsciously, it is not so much the disease
but the seropositives who are being wished away, with the AIDS System constructed as a
wish-fulfillment around the group fantasy, and camouflaged as medical services.
"There are two ways to find out," read a slogan on the outside of an envelope
one gay man received in the mail: "You can get tested. Or you can get sick."
Even though AIDS was nowhere mentioned, he "knew right away what this cryptic message
meant." It felt, he said, "like an assault." The letter was from Project
Inform, a group that began as a dissident AIDS advocacy group and quickly devolved into
what one commentator called a "power broker, coordinating sections of the AIDS
industry with the appropriate government agencies." In a letter to the San Francisco
gay paper the Sentinel, one reader described Project Inform as a "pharmaceutical
pimp."
Extensive sections of Johnsons HIV Negative are contributed by various
"uninfected" gay men. And Odets book, the more analytic of the two,
contains many briefer quotes drawn from the authors extensive counselling
experience. Among the remarks: "Negative men are like my family: they have no
feelings." "What I know is that I am going to follow my heart, and I think
its leading me to the (kind of) understanding that having HIV gives a person."
"They will have a cure for it by the time we get it." Another remark I have
heard repeatedly is "If I test positive, I can start taking care of myself."
There is a common feeling that to try to stay negative to
"struggle" to stay negative, as one man put it is simply too difficult,
too destructive of any joy in life. This is hardly surprising when the rules of
"safe" behavior are at once so stringent and so slippery. Is oral sex safe? Is
rimming with a dental dam OK and if it is, why should we want to do it? Should I worry
about that sharp pizza crust that might cut my lip and let the virus in? Am I condemned to
stay around and watch all my friends die?
In the shadow of such conundrums, becoming positive seems to some like a doorway to
intimacy, light and love, and life with AIDS, for all its horrors, begins to appear more
rewarding, or just simpler, than life without it. Whatever the respective merits of these
questions, the mental soil in which they grow is fertile ground for a positive choice.
Part 2 of this essay will be featured in the next issue of Continuum,
and an expanded version of the whole article will appear in The AIDS Cult: Essays
on the Gay Health Crisis, edited by John Lauritsen and Ian Young (Asklepios, Box 1902,
Provincetown, MA 02657-0245, USA.)
Ian Young was born in London. His involvement in the gay movement, as activist,
writer and publisher, began in the 1960s. His books include the ground-breaking gay
psychohistory The Stonewall Experiment, as well as poetry, literary anthologies,
bibliography and history.
Director of a communications consultancy firm and a frequent contributor to the gay
press, he lives in Toronto and Banff, Alberta.
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